Claudine Jurkovitz, MD, MPH is the Principal Investigator for this PCORI funded project. She is Senior Physician Scientist in the Value Institute at Christiana Care and Investigator in the Epi/Biostat core of the Delaware ACCEL Center for Translational Research. As such she helps Physicians, Residents and young Investigators to develop their research projects and analytical plan and works closely with the Value Institute data management team. She is also an active member of the steering committee of the INBRE Bioinformatics Network of Delaware (BiND). As a Nephrologist Epidemiologist she has actively developed her own research interests, mostly in the field of chronic kidney disease (CKD) and health services research. She is currently the PI of the ACCEL-CTR funded Big Data Pilot grant: “Linking Data for Kidney Care”, which goal is to build a CKD registry in the State of Delaware by linking electronic health records to (1) predict hospitalizations in patients with CKD and (2) examine the transition from pediatric to adult care in young adults with CKD. From December 2005 to July 2012, she was the Director of Operations of the Christiana Care Center for Outcomes Research (CCOR). As such, she supervised the day-to day management of the center, and worked closely with Dr. Weintraub (CCOR Director) and the Director of Biostatistics to establish research priorities. Prior to working at Christiana Care, she was Assistant Professor of Medicine at Emory University in Atlanta. While pursuing her research interest in the prevention of progression of kidney disease, she also became an active member of the Institutional Review Board (IRB) and was later nominated vice chair of the Emory University IRB.
Dr. Jurkovitz is deeply committed to public health and to the prevention of CKD progression as evidenced by her 2004-2012 appointment to the Steering Committee for the Kidney Early Evaluation Prevention Program (KEEP) – a nation-wide screening program for kidney disease – and as chair of the Prevention Committee of the National Kidney Foundation Medical Advisory Board of Georgia in 2005.
Shay Scott, MA is the Director of Operations at Henrietta Johnson Medical Center (HJMC). She is responsible for the management of staff in developing and implementing Henrietta Johnson Medical Center’s mission and strategic plan. She works in conjunction with the CEO to develop practice transformational strategies and adopt process improvements tools and methods. She also assists the clinical and administrative teams with program development and implementation and oversees community outreach programs with organizations in HJMC’s service area. Previously, Ms. Scott served as HJMC’s Fund Development Director. In this role, she was responsible for researching and preparing grant proposals and providing ongoing grant oversight. She also developed year-end-appeal and underwriting requests, and managed all fundraising programs for the health center. Prior to joining HJMC, Ms. Scott served as the Director of Veteran and Housing First Services for Connections CSP, Inc., a private non-profit social services agency in Wilmington, DE where she provided oversight for Supportive Services For Veteran Families funding and sub-grantees and was responsible for planning, implementing and supervising program activities that provided outreach, case management, and financial assistance for Veterans experiencing homelessness or in immanent risk of becoming homeless. In 2007, Ms. Scott participated in Leadership Delaware, an initiative of the Delaware Association of Nonprofit Agencies (DANA) designed to train individuals in becoming nonprofit board members. She takes part in ongoing conferences and workshops regarding cultural competency, trauma informed care, and community redevelopment in addition to health center quality and operational efficiency conferences.
Nancy Scott, MS is a retired nurse and an ordained minister. She is currently pursuing a doctorate in Industrial Organizational Psychology. Nancy was on dialysis for seven years and received a kidney transplant in 2011. While on dialysis, she started a support group in her unit and became a member of Dialysis Patient Citizens, a non-profit organization located in Washington, D.C., dedicated and committed to improving the quality of life of renal patients through advocacy and education. After two years, Nancy became President and continues to advocate on Capitol Hill and speaks at symposiums and conferences. Post-transplant, she became the President of a sister organization, Dialysis Patient Citizens Education Center, focusing on the education of renal, dialysis and transplant patients. Nancy is currently President of the Board of Directors at Henrietta Johnson Medical Center in Wilmington, DE. She continues to encourage and empower patients by telling them her story and accomplishments after dialysis. She is committed to educating everyone about the prevention of renal disease.
Joanne Smith, RN is Home Therapies Manager at Fresenius Medical Care, in Newark, DE, one of the largest home dialysis programs in the country. She is in the process of certification for a progressive transitional dialysis clinic with a stand- alone home clinic. She is also Education Manager for Dialysis Patient Citizens, Washington, DC, an advocacy organization for patients with chronic kidney disease. She has been involved in education efforts for patients diagnosed, from early kidney disease to end stage renal disease (ESRD), specifically discussing available treatment options for ESRD. She has written a number of articles including, “The Importance of a Care Partner”, (AAKP Renalife – January 2015), “The Gift of Life—A Donor’s Perspective”, (The Kidney Citizen – December 2015), and ongoing editorial content in Dialysis Patients Citizens’ monthly e-newsletters. Ongoing projects include work with Kidney Care Partners in Washington, DC where she is helping CMS create and revise critical quality indicators and weighing capabilities for Medicare reimbursement for treatment, and Home Alliance, also in Washington, DC, where she is working with Medicare contractors as a stakeholder in establishing Medicare beneficiary access to more frequent hemodialysis. Joanne is a board member of Henrietta Johnson Health Center and Health Policy Representative as well as a chapter officer for the Delaware American Nephrology Nurses’ Association (ANNA), advocating for CKD and ESRD patients in Washington, D.C., and meeting and educating Delaware delegates on kidney disease and current legislation. Joanne donated a kidney to a home dialysis patient in August 2015.
Timothy Gibbs, MPH, NPMc is Executive Director of the Delaware Academy of Medicine and Executive Director of the Delaware Public Health Association. He has worked in the nonprofit sector for most of his career. Tim directed Delaware’s first emergency and transitional housing project for people with HIV and AIDS until its close and programmatic integration into Catholic Charities in 1990. Subsequently Tim was appointed Executive Director of Catalyst Project, a Delaware-based nonprofit focused on the effective and appropriate use of technology in the field of human service delivery. Catalyst’s initiatives included: the Delaware Helpline Online searchable database, the City of Wilmington’s Family Support Partnership online client maintenance system, DiamondNet (the first network for Delaware area nonprofit agencies) and support materials for the Delaware Department of Labors’ Virtual Career Network. Tim began contract work with the Delaware Academy of Medicine in 2001 and was hired as the full-time Director of Information Technologies in 2004. In 2008, after a year of acting as the Interim Executive Director of the Academy, he was promoted to permanent Executive Director. As Executive Director of the Academy, and with significant support and engagement of the Board of Directors and staff, Tim has led the Academy to redefine its mission and programs as the Academy enters into its 86th year of existence. He is a board member at the Immunization Coalition of Delaware, the American Society for Hypertension (Delaware Valley Chapter), the Delaware Community Foundation Development Team, and the Delaware Stroke Initiative. Tim is a student of Lean Six Sigma (green belt), as well as a graduate of the ACT (Achieving Competency Today) rapid cycle methodology and brings both of those disciplines to his work.
Heather Bittner Fagan, MD, MPH, FAAFP is a practicing family physician, an Associate Professor, the Associate Vice Chair for Research in Family & Community Medicine at Christiana Care Health System and Dr Fagan leads the ACCEL Community Engagement (ACE) awards program and curriculum. Dr. Fagan has made regional and national contributions to research on cancer screening and prevention in primary care and underserved populations as well as community engagement, specifically engaging physicians and their primary care practices. Dr. Fagan received the American Cancer Society’s Cancer Control Career Development Award, which recognizes and develops national leaders in cancer control and prevention, and has received research funding from the National Cancer Institute. Dr. Fagan serves on the institutional review board for Christiana Care and University of Delaware. She is a fellow of the American Academy of Family Physicians and a member of professional organizations including the Society of Teachers of Family Medicine, North American Primary Care Research Group, the Medical Society of Delaware, a board member of the Delaware Academy of Family Physicians and an invited member of the Delaware Health Care Consortium’s Early Detection and Prevention Committee.